{"id":23753,"date":"2022-03-21T16:13:16","date_gmt":"2022-03-21T16:13:16","guid":{"rendered":"https:\/\/www.theisn.org\/?page_id=23753"},"modified":"2026-04-16T14:55:53","modified_gmt":"2026-04-16T14:55:53","slug":"resources-people-kidney-disease","status":"publish","type":"page","link":"https:\/\/www.theisn.org\/in-action\/community\/resources-people-kidney-disease\/","title":{"rendered":"Resources for People Living with Kidney Disease"},"content":{"rendered":"

[vc_row][vc_column][vc_separator][vc_column_text]Over 850 million people \u200blive with kidney disease worldwide. This page contains resources for individuals living with kidney disease, their carers, loved ones, as well as for the general public. Below is a map of global kidney patient organizations, patient stories and general information about kidneys, including risk factors for kidney disease and how to take care of your kidneys.[\/vc_column_text][vc_column_text]<\/a>[\/vc_column_text][vc_text_separator title=”Global Kidney Patient Organizations” i_icon_fontawesome=”fas fa-users” add_icon=”true”][vc_empty_space height=”20px”][vc_column_text]<\/p>\n

For more local resources, use the map below to find a patient organization near you.<\/p>\n

Click the dots on the map to see the country, patient organization name and website. If you are aware of any other organizations, please do feel free to share with rblondel@theisn.org<\/a>.<\/p>\n

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The ISN is not responsible for content on patient organization websites.<\/h6>\n

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Want to learn more about your kidneys, or if you are at risk of kidney disease, and what you can do to protect yourself? The tools below are the perfect starting point.<\/p>\n

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Take this one-minute quiz to understand if you are at risk for kidney disease<\/p>\n

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World Kidney Day’s 8 golden rules help you take good care of your kidneys<\/p>\n

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Listen to this podcast for a general understanding of kidney health<\/p>\n

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This guide reviews and explains different clinical trials in a way that helps all readers understand no matter their degree of scientific knowledge<\/p>\n

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Listen to this podcast to learn more about the KidneyEducation.com<\/a> project<\/p>\n

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Find additional resources and information on dialysis in the ISN dialysis toolkit<\/p>\n

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This resource, available in Chinese, provides information on living positively in all stages of chronic kidney disease. Published by the\u00a0International Association of Chinese Nephrologists<\/a>\u00a0(IACN) and the CUHK Carol & Richard Yu PD Research Centre.<\/p>\n

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Learn more on how ISN advocates and campaigns for better patient health<\/p>\n

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Watch this videos series to understand the role of kidney supportive care in improving quality of life, and how this can be integrated into existing kidney disease treatments.<\/p>\n

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Ver\u00f3nica Martinez<\/strong>
\nMexico<\/em><\/p>\n

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Hear more from\u00a0Ver\u00f3nica<\/a><\/h5>\n

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Saad Ahmad Khan<\/strong>
\nIndia<\/em>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=”1\/4″][vc_single_image image=”28926″ img_size=”full” style=”vc_box_shadow” onclick=”link_image”][vc_column_text]<\/p>\n

Michel Baujard<\/strong>
\nFrance<\/em><\/p>\n

\"\" \u00a0Translation<\/a><\/h6>\n
Hear more from Michel<\/a><\/h5>\n

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L\u00edvia Linck Silveira
\n<\/b>Brazil<\/em><\/span><\/p>\n

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Miracle Okon
\n<\/b><\/span>Nigeria<\/em>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=”1\/4″][vc_single_image image=”28929″ img_size=”full” style=”vc_box_shadow” onclick=”link_image”][vc_column_text]<\/p>\n

Manuela D\u00e9jean
\n<\/strong>France<\/em>
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\"\" \u00a0Translation<\/a><\/h6>\n
Hear more from Manuela<\/a><\/h5>\n

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Marion Braks
\n<\/b><\/span>Belgium, Netherlands, France<\/em>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=”1\/4″][vc_single_image image=”25769″ img_size=”full” style=”vc_box_shadow” onclick=”link_image”][vc_column_text]<\/p>\n

Sivia Kumar Raghavan<\/strong>
\nMalaysia<\/em><\/p>\n

Hear more from Siva<\/a><\/h5>\n

[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_tta_section][vc_tta_section title=”World Kidney Day” tab_id=”1695637578238-250403e8-5600″ el_class=”accordion-isn”][vc_column_text]World Kidney Day is a global campaign aimed at raising awareness of the importance of our kidneys. World Kidney Day returns every year on the second Thursday in March. Every year the theme changes but the mission remains the same. Across the globe, hundreds of events take place, from public screenings in Argentina to Zumba marathons in Malaysia. You can learn more about the campaign by clicking below.<\/p>\n

The campaign’s objectives are:<\/strong><\/p>\n

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Get involved in the campaign here<\/a><\/span><\/p>\n

[\/vc_column_text][\/vc_tta_section][vc_tta_section title=”ISN Patient Liaison Advisory Group” tab_id=”ISN_PLAG” el_class=”accordion-isn”][vc_column_text]<\/p>\n

Created in 2021, the ISN\u2019s Patient Liaison Advisory Group <\/a>represents the inter-continental diversity of kidney patients with one representative from each of the society\u2019s 10 regions. Its mission is to advise and guide the ISN so that the patient perspective becomes embedded within our work shaping health initiatives and research programmes so that they tackle the global burden of kidney disease.<\/p>\n

PLAG Activities:<\/p>\n

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  1. Collaboration with World Kidney Day (WKD) – Bill Wang, chair of the PLAG, participated in a 2024 World Kidney Day webinar<\/a>, where he provided the patient perspective on advancing equitable access to care and optimal medication practice.<\/li>\n
  2. PLAG members collaborate with the\u00a0ISN-ACT Global Trials Focus\u00a0members on the\u00a0ISN\u202f\u201cGuide for Everyone<\/a>\u201d\u202fseries,\u202fwhich explains clinical trials in a way that helps all readers, no matter their degree of scientific knowledge, understand the key points.<\/li>\n<\/ol>\n

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    [vc_row][vc_column][vc_separator][vc_column_text]Over 850 million people \u200blive with kidney disease worldwide. This page contains resources for individuals living with kidney disease, their carers, loved ones, as well as for the general public. Below is a map of global kidney patient organizations, patient stories and general information about kidneys, including risk factors for kidney disease and how to […]<\/p>\n","protected":false},"author":20,"featured_media":0,"parent":24550,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-23753","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/pages\/23753"}],"collection":[{"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/comments?post=23753"}],"version-history":[{"count":9,"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/pages\/23753\/revisions"}],"predecessor-version":[{"id":53411,"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/pages\/23753\/revisions\/53411"}],"up":[{"embeddable":true,"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/pages\/24550"}],"wp:attachment":[{"href":"https:\/\/www.theisn.org\/wp-json\/wp\/v2\/media?parent=23753"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}